Triple X Syndrome Support
Triple X Syndrome Support is a new innovative idea that is piloted in Birmingham, UK is and aimed around supporting people affected by Triple X Syndrome. We aim to promote awareness and understanding whilst supporting Triple X adults with the range of difficulties they are facing. In part, we will do this by, hosting regular face-to-face meet ups. When we are successful, we will look to support families affected by Triple X as well. We are a not-for-profit organisation and we rely solely on volunteers and donations to help us achieve our objectives and goals. We would like to expand into additional projects with community funding.
We run a group on Facebook called Triple X Syndrome (West Midlands) meet up group. This serves as a support group for Triple X adults. We want this group to be a contact point for support as no service like this currently exists. The group mainly has a regional focus although adults outside of the area are welcome to join if they are happy to travel to meet and contribute to the development of the group.
What Is Triple X?
Women usually have 2 X chromosomes. Triple X Syndrome (also commonly called Trisomy X) is a non-hereditary rare genetic disorder affecting around 1 in 1000 women. In this instance, it signifies the presence of an extra X. While it causes few identifying physical features, it can cause a spectrum of symptoms with some people more affected than others. Overall it’s associated with a higher chance of learning disabilities and/or Specific learning differences. It can cause speech and motor delays, dyslexia, dyspraxia, dyscalculia, emotional and behavioural problems, sensory issues and symptoms of autism spectrum disorder.
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